Adalia Rose Williams of Texas inspired the entire globe by freely discussing her experience with Early-Aging Disorder. Her family now informs her that she has died at the age of fifteen.
“She entered quietly and went quietly, but her life was far from quiet,” her family wrote in an Instagram message.
Through social media, Adalia Rose became an internet phenomenon and a celebrity. Hutchinson-Gilford progeria syndrome is a hereditary disorder marked by indications of accelerated aging. The Austin, Texas native was born with it. According to the Progeria Research Foundation, the illness affects roughly 400 children worldwide.
Adalia Rose Williams died when she was 15 years old.
Despite having an extremely unusual ailment, Adalia Rose, dubbed the “real-life Benjamin Button,” resolved that it would not hinder her life. Instead, she utilized it to demonstrate to the rest of the world that you should always be welcomed for who you are.
Adalia launched a YouTube account where she posted cosmetic instructions, dance routines, and other videos. Her videos received over 200 million views, and she had over 12 million Facebook fans and roughly 470,000 Instagram followers.
Adalia, who was 15 years old at the time of her death, has already died away, according to her family.
“Adalia Rose Williams had been set free from the confines of this world. She entered quietly and exited quietly, but her existence was everything from quiet. She impacted MILLIONS of people and made an indelible mark on everyone who met her; she is no longer in pain and is now dancing to all of her favorite songs. Adalia Rose William’s family posted a message on her Instagram page saying, “I desperately wish this wasn’t our reality, but unfortunately, it is.”
“We want to express our gratitude to everyone who has loved and supported her.” Thank you to all of her physicians and nurses who have worked tirelessly to keep her healthy throughout the years. The family would now wish to grieve privately for this tragic loss.”
Adalia Rose William was born in Round Rock, Texas on December 10, 2006. Doctors noticed something wasn’t quite right around a month after she was born because she wasn’t developing as expected, according to her mother, Natalia Pallante.
‘Benjamin Button in real life’
“That was one of the first signs,” she told the NZ Herald, “and then it was also that the skin on her belly was so tight and simply strange looking.”
“She was diagnosed when she was around three months old.” That’s when the major transformations began. Her hair began to fall out, her little veins became more visible, and her skin began to weaken. I was a single mother at the time, so I was completely alone when I received the diagnosis. It was just her and me, and I was completely alone.”
The numbers didn’t bring the family any comfort once it was determined that Adalia had Hutchinson-Gilford progeria syndrome. A kid with the condition has an average life expectancy of 13 years.
A mutation in the LMNA gene, which generates the Lamin A protein that keeps the nucleus of a cell together, causes progeria. According to Mayo Clinic, the disorder has no known treatment and causes youngsters to age considerably quicker than normal. Symptoms include hair loss and delayed development.
Adalia had a number of health problems, but she chose to ignore them. Instead, she would live her life as she pleased, and as a result, she became an inspiration to people all around the world.
“I suppose I’m a diva since I always get my way!” In 2018, Adalia stated.
“Having a social media celebrity 11-year-old is insane,” her father, Ryan, added. “Especially when we’re out in public — you know a lot of people recognize her.”
Adalia launched her YouTube account in 2012. She began sharing films of herself, documenting her life and allowing others to see what it was like to live with the disease.
On social media, millions of people follow you.
Adalia went on to become a trendsetter, posting a number of beauty and nail lesson videos, among other things.
Her videos were shared across all of her social media platforms. It wasn’t long until she had millions of followers on her various social media sites, and Adalia got hundreds of messages from people all around the world expressing their love for her.
Nathalie’s mother, Nathalie, considered the Youtube channel to be a safe haven. Not for her, but for Adalia, who proved that being different is perfectly OK.
“There are days when she says things like, ‘I wish I was taller, I wish I had hair, I wish I looked like everyone else, I wish I could do what everyone else can do,'” Nathalie explained. “But then she’ll say, ‘Who needs hair anyway? I have a bunch of wigs, I can change my hair every day.'”
Fans from all around the world are now sending condolences to Adalia’s family via social media. Michael Costello, a fashion designer, created two unique gowns for the child on her 13th birthday in 2019. He paid an impassioned tribute to her on Instagram.
“She was an angel,” says the narrator. Regardless of the cards she was given, she maintained a cheerful attitude and had grand ambitions to assist everyone around her. Adalia, I adore you so much. I can’t express how much you’ve transformed my life in words. I’ll miss you terribly, buddy, and I pledge to treasure all of our lovely memories.”
Adalia Rose’s GoFundMe page
Adalia Rose has a GoFundMe campaign put up in her honor. The organization’s objective is to raise $50,000 to pay burial and hospital expenditures. The fundraising is only $10,000 shy of its target as of this writing.
“Adalia has absolutely transformed my life.” “I wasn’t mean, but I wasn’t polite to myself,” Nathalie, her mother, remarked in 2018. “I wasn’t grateful at all.” Until she was born, I had no idea what life was like. Her admirers are always complimenting her. They always say how inspiring she is and how she doesn’t let anything get in her way, and they’re correct. “She adores those remarks.”
We extend our heartfelt condolences to the Williams family. Please share this post on Facebook to show your support for Adalia’s bravery.